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2015: The Question I was left with
When I was diagnosed with fibromyalgia in 2015, I finally had a name for what was happening to me. In one way, that was a relief.But in another way, I was completely lost. I had pain. I had fatigue. I didn't understand my body. And I remember thinking, okay, so what happens now? That question stayed with me for a long time. Because a diagnosis can tell you what you have. It doesn't necessarily tell you how to live your life with it.
2015 – 2021: I thought I had time
From 2015 to 2021, I was deeply involved in my work. And because I was still functioning, I thought I was managing.Maybe you know that feeling. You're in pain. You're exhausted. But you're still showing up. So you tell yourself: I'll deal with my health later. I did that for years. I didn't realise that while I was building my career and getting through everyday life, I was also putting my health further and further away.
2022: Then 'later' arrived!!!
Unbearable pain. A hand losing feeling. Carpal tunnel surgery. That's where my fibromyalgia journey hit a breaking point.
In 2022, I was diagnosed with rheumatoid arthritis. Later, Hashimoto's.
Now I was looking at my health very differently. I hit one of my lowest points. I felt overwhelmed. I felt frightened. And, honestly, I didn't have all the answers.But something changed. I stopped expecting myself to have everything figured out immediately. I gave myself time to understand what was happening, to learn, to notice what helped and what didn't. And slowly, I started putting the pieces together.
There wasn't one big answer
After years of searching, I discovered there wasn't one magic answer waiting for me. There were many small pieces: movement, stress, sleep, food, my relationship with pain, my capacity, and something I hadn't understood the importance of at the beginning: connection with other people. Over time, I studied yoga therapy, nutrition, the body and mind, meditation, and somatic approaches. I began to understand my own experience in a completely different way.I wasn't trying to become an expert overnight. I was trying to understand myself. And little by little, I did.
Fibromyalgia can be such a lonely illness. You can be surrounded by people and still feel completely alone. You say you're exhausted. Someone looks at you and says, 'But you look fine.'You cancel plans because your body simply doesn't have the capacity. And then you start worrying about what other people think. Sometimes you don't even want to explain anymore — because explaining your pain can become another form of exhaustion.That is why community means so much to me. There's a different kind of relief when you can say 'I'm having a bad day' and the person on the other side doesn't need a long explanation. They understand. They've been there.
I spent years feeling lost. Then I spent years figuring things out.
And somewhere along the way, I realised, I don't want someone else to lose ten years doing what I did. That's why I started Rewiring Fibromyalgia.Not because I have a perfect life. Not because I've found a magical cure. And not because I think everyone's journey should look like mine.
It's because I know what it feels like to be at the beginning with a diagnosis, with questions, and without enough guidance.I want this to be a place where we can talk about the reality of living with this condition, where you can understand your body without constantly blaming it, and where you don't have to do all of this alone.
You don't have to figure this out alone. Join the Rewiring Fibromyalgia community and take the next step with people who truly understand.
JOIN THE COMMUNITY, IT'S FREE!Registered yoga teacher from Yoga Alliance
Certified yoga therapist (International Association of Yoga Therapists)
Post-graduate diploma in nutrition and dietetics
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